ABE Data Privacy Policy

Thank you for your participation in the Amgen Biotech Experience (ABE). This consent form provides information for ABE participants to understand how the processing of their personal data will be conducted for the purpose of this program. (In particular, data from European Union residents are subject to the General Data Protection Regulation (GDPR).) Please review the information provided.

Education Development Center (EDC) is a global nonprofit that advances solutions to improve education, promote health, and expand economic opportunity. As part of fulfilling this mission, our project activities include personal data collection, process, and other related activities. EDC would like to obtain your permission to use your personal information as described below.

ABE is an innovative science education program that introduces students to the excitement of scientific discovery and builds bridges between school and real-life biosciences. We periodically collect identifying information from ABE participants to better understand program implementation and outcomes. 
Personal identifying information collected will be limited to:

  • Full name
  • Job title
  • Organizational/school affiliation and location
  • Program site location
  • Business contact information (telephone no., email)

Personal information is collected for the purposes of communicating with participants and promoting ABE. 

  • We may ask if we can share your name and location with testimonials for public promotion of the ABE program. In this instance, we will ask you specifically for your permission to do so. 

Data may be stored and processed through the following applications:

  • Data collection: Qualtrics.com, Mailchimp.com 
  • Data management: MS Excel 
  • Data storage: SharePoint or Box
  • Drupal (website platform) for event registrations

Data will be stored for the duration of the ABE project unless you request, in writing, for their removal. You can do this at any time (see Your Rights, below).

PARTICIPANTS OUTSIDE OF THE UNITED STATES. Your personal data is transferred to the United States for processing; the U.S. has not sought an adequacy decision from the European Commission. This means that there may be risks to your personal data under the U.S. jurisdiction. However, EDC is dedicated to protecting the privacy of our participants and we adopt and implement the safeguards necessary to protect your personal data. We process the personal data you shared with us on the basis of your explicit consent, under Article 49 GDPR, for the purposes and the duration of this project only.

YOUR RIGHTS. Under the GDPR and its implementing laws at national level, you have the following rights, with the conditions and limitations set out in Chapter III of the GDPR:
•    To know that your data is being processed
•    To access and receive a copy of your personal data
•    To request corrections of your personal data
•    To request deletion of your data
•    To withdraw your consent at any time.

To exercise your rights or address concerns about how your personal data is being handled, please use the contact information below to submit a request. When you submit a request, please indicate your name, the name of this project, your reasons for making the request, and other details you think will be useful for us to comply with your request. If you will not be satisfied with our reply and how we protect your personal data, you can contact the data protection authority in your home country or in another relevant jurisdiction for this processing activity, pursuant to the conditions of Article 77 GDPR.

Contact information:
SILVIA LAVITA
Education Development Center
43 Foundry Avenue
Waltham, MA 02453
Phone: 617-618-2759
Email: slavita@edc.org